Information resources

Our practical, up-to-date information resources explain Motor Neurone Disease (MND) and empower people impacted by the disease to make decisions to help them live better for longer.

Prefer paper? Contact us if you would like paper copies of any of the following brochures by calling 1800 777 175 (07 3372 9004) or email supportservices@mndaq.org.au.

Facts about MND

The following information resources are a good starting point:

• What is MND? 
• More About MND 

Living better for longer

Find answers to care issues in our series of facts sheets exploring interventions that research has shown to help people live better for longer with MND:

• Living with MND during the COVID-19 pandemic  
• MND evidence-based interventions - an overview (EB1): A summary of the ‘Living better for longer’ series of fact sheets (2 pages)   
• Multidisciplinary care (EB2)   
• Riluzole (EB4)   
• Breathing and MND: An introduction (EB5)   
• Breathing and MND: What you can do (EB6) Tips to help you manage respiratory symptoms and stay more comfortable (2 pages)   
• Breathing and MND: Medication and non-invasive ventilation (EB7). An overview of using non-invasive ventilation and medications to manage breathlessness (2 pages)   
• Considering gastrostomy - PEG and RIG (EB8). Information about gastrostomy as a way to improve nutrition (2 pages)  
• Pain management with MND
• Sexuality and intimacy

For healthcare professionals and service providers

The following resources provide proven, evidence-based information to help health and community care professionals promote optimal care outcomes for people living with MND:

MND Connect

The MND Australia website for health and community care professionals involved in MND care and support

MND Connect 

MND Aware training modules

A self-paced, e-learning program developed by MND NSW, which provides health and community care professionals with a basic understanding of MND and the impact of MND on an individual's life.

MND Aware 

Aspects of care for the primary health care team 2017

A detailed clinical guide for GPs and the primary healthcare team who are supporting people living with MND and their families. Printed copies are available, please get in touch to request one. (40 pages)

Aspects of Care for primary health team 

Aspects of care for staff of residential aged care facilities

A booklet produced by MND NSW for residential aged care staff, which will assist them to meet the needs of residents living with MND (74 pages)

Aspects of Care for staff of aged care facilities 

Aspects of care: community care

A booklet produced by MND NSW for community care providers and case managers, which provided information on providing MND care in a community setting (78 pages)

Aspects of Care Community Care 

GPs Diagnostic Tool

This information sheet was created to assist General Practitioners identify the symptoms of MND.

GPs Diagnostic Tool 

Paramedics tool

A booklet developed to assist paramedics when they have first contact with a patient with Motor Neurone Disease.

Paramedics tool 

For families and young people

This extensive information pack will help parents talk about MND with their children. The series includes booklets for:

• Parents - This document outlines how to keep communication with children strong 
• 8 - 12 year olds 
• Teenagers 
• Young friends 
• Schools  

Familial MND

Visit page 

Planning ahead

Download factsheet 

MNDQLD Webinars

MND Queensland hosts regular, educational webinars on topics of interest for people impacted by MND. Click here to go to our library of recordings.

Watch Webinars