If a family member or friend has been recently diagnosed with Motor Neurone Disease (MND) you may be wondering where to turn for information and support.
MND Queensland has the resources and expertise to help family and friends care for their loved one.
Recently diagnosed – where to start
What to read
Our downloadable information resources include:
- Facts about MND
- Fact sheets on living better for longer
- Information for families and young people
Who to talk with
MND Queensland’s expert team can answer questions and help you seek support and information based on your loved one’s needs.
To connect with one of MND Queensland's team members
Phone 1800 777 175 (07 3372 9004)
As your loved one’s needs change, you may be interested in seeking information on how you can help to maintain their quality of life. Our section on Living Better outlines some of the most common MND symptoms and provides tips to empower both the person with MND and carer. This information can also be downloaded.
If you would like to meet other people who are touched by MND, you may like to attend an event, Support Group Meeting and/or join our MND Queensland Community Facebook Group.
CarerHelp is a website designed to assist people who are caring for someone who is at the end of life. It provides information and advice on how carers can be better prepared, with links to useful caring resources, videos of carer experiences, and factsheets.