Dialog Box

For family and friends

If a family member or friend has been recently diagnosed with Motor Neurone Disease (MND) you may be wondering where to turn for information and support.

MND Queensland has the resources and expertise to help family and friends care for their loved one.

Recently diagnosed – where to start

What to read

Our downloadable information resources include:

  • Facts about MND  
  • Fact sheets on living better for longer 
  • Information for families and young people

MND information and advice for families impacted by a Motor Neurone Disease diagnosis

See our full list of information resources available 
Go to resources

Who to talk with

MND Queensland’s expert team can answer questions and help you seek support and information based on your loved one’s needs.

To connect with one of MND Queensland's team members

Phone 1800 777 175 (07 3372 9004

Email supportservices@mndaq.org.au

Ongoing support

As your loved one’s needs change, you may be interested in seeking information on how you can help to maintain their quality of life.  Our section on Living Better outlines some of the most common MND symptoms and provides tips to empower both the person with MND and carer. This information can also be downloaded.

Information about Motor Neurone Disease (MND)

Read more about Living Better with MND 
view our tips

If you would like to meet other people who are touched by MND, you may like to attend an event, Support Group Meeting and/or join our MND Queensland Community Facebook Group. 


CarerHelp is a website designed to assist people who are caring for someone who is at the end of life. It provides information and advice on how carers can be better prepared, with links to useful caring resources, videos of carer experiences, and factsheets.

Visit website 

Carer support for people caring for someone with Motor Neurone Disease (MND)