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Just diagnosed

Recently diagnosed with MND?

If you or someone you care about has recently been diagnosed with Motor Neurone Disease (MND) you may be feeling a range of confusing emotions and have many questions.

We understand what you're going through and are here to listen and here to help.


As a leading organisation, wholly focused on supporting people living with MND, we offer understanding and practical assistance including information, advice and care support services available free of charge.

1. Reach out to us via our helpline service

MND can be very different from other progressive neurological disorders (such as MS) so it’s important you are able to access specialist MND advice and information as you learn about MND.

A helpful early step is to reach out to our friendly and understanding team.

We provide a helpline telephone service for anyone wanting to know more about MND including people with a diagnosis, family members and carers.

Call 1800 777 175 (07 3372 9004during business hours 8.30am to 4.30pm Monday to Friday. You can also email us: supportservices@mndaq.org.au or complete the form above and have us call you.

Good quality information and support from people who understand MND and its impacts are vital at this time. Below are some suggestions about where to start.

2. Take time to find out what you need

Diagnosis with MND can bring on a wide range of confusing emotions and it can feel overwhelming. You, your family and everyone close to you may need time to adjust. At this time, it’s important that you have access to information and resources to help you come to terms with this diagnosis and manage this condition. You may find it helpful to:

Download this booklet which provides a simple introduction to the disease including its symptoms, symptom management, medication, and care services.

When you are ready to read more about the disease you may also like to:

Access our full list of available information resources – go to resources.

Visit MND Australia, our peak body, for up to date comprehensive evidence-based information that supports those living with and impacted by MND.

3. Find support that's best for you

MND Queensland offers a comprehensive range of services for people living with MND. A specialised organisation, we understand what you’re going through and are dedicated to providing you with the support that’s best for you.

Learn more – visit our Get Support page.

How we can support you

Request a call back