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MND Awareness Week 2021

Jason Russo | 30/04/2021

MND Awareness Week 2021 runs from Sunday the 2nd of May until Saturday the 8th of May and is an opportunity for everyone to help raise awareness about Motor Neurone Disease in the broader community as well as raise vital funds to provide support and services to families impacted by this terrible disease right across Queensland.

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Survey of Unpaid Carers (Aged 9-24)

Jason Russo | 12/04/2021

Griffith University, Arafmi and Little Dreamers are undertaking research examining the experiences of young people (aged 9-24) who provide care (or assist in providing care) to one or more family members or friends. We would like to hear about your experiences through an online survey that will take approximately 15 minutes. Your participation will mean we gain a better understanding of how to support young carers in the future.  

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Greater Brisbane Region Lockdown - Covid19 Update 29th March

| 29/03/2021

The Queensland Government have announced there will be a three-day lockdown as of 5pm today, Monday 29th March. The lockdown will affect areas of Greater Brisbane including Brisbane, Logan, Moreton Bay, Ipswich and Redlands. If you are unaware of the restrictions that may apply to you from 5pm today and for the list of areas of exposure then please access the Queensland Health site on https://www.qld.gov.au/health/conditions/health-alerts/coronavirus-covid-19.

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MND Included in COVID-19 Phase 1b Vaccination Rollout

Jason Russo | 19/03/2021

The COVID-19 vaccination rollout has started and Phase 1b is due to start on Monday 22 March. Phase 1b includes all adults over the age of 70 and younger adults with an underlying medical condition including those with a disability. The Department of Health have confirmed that Motor Neurone Disease is one of the specified underlying medical conditions. Phase 1b also includes both formal and informal carers of people eligible in 1b.

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JoJo's Glitter Gala - Benefitting MND Queensland

Jason Russo | 12/03/2021

MND Queensland is pleased to promote JoJo's Glitter Gala which is being held on Saturday 9 October at the Victoria Park Golf Club Marquee. The event is a chance to glam up, have a fun night out and fundraise for Motor Neurone Disease.

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Blackbird - Film Fundraiser

Jason Russo | 22/01/2021

Join us at a special preview screening of Blackbird, starring Susan Sarandon, Sam Neill, Kate Winslet, Mia Wasikowska and Rainn Wilson about a family affected by Motor Neurone Disease/ALS.

When: Wednesday 17th February 2021 | 6:00PM arrival for a 6:30PM screening

Where: Dendy Cinemas Coorparoo

Cost: $20.00 per ticket/$18 for MND Queensland members (contact us to get your promo code on 07 3372 9004 or email events@mdnaq.org.au)

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Brisbane Region Lockdown - COVID-19 Update 8 January 2021

Jason Russo | 8/01/2021

Today the Queensland Government put a number of Council areas into a 3-day lockdown.  This includes Brisbane City where our office is located.  If you are unaware of the restrictions that may apply to you from 6pm today Friday 8 January to 6pm on Monday 11 January then please access the Queensland Health site on https://www.qld.gov.au/health/conditions/health-alerts/coronavirus-covid-19.

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CHAMPION ALS/MND STUDY

Jason Russo | 6/11/2020

CHAMPION MND/ALS STUDY

 

The CHAMPION MND/ALS Study is a Phase III, double-blind, randomised, placebo-controlled, parallel-group, multicentre study with an open-label extension period, to evaluate the efficacy and safety of ravulizumab in adult patients with amyotrophic lateral sclerosis (ALS or Motor Neurone Disease/MND). Ravulizumab is an investigational medication not currently approved for use in patients with MND/ALS in any country worldwide.

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MND Queensland has a new office!

Jason Russo | 29/10/2020

MND Queensland recently moved from our old office in Inala, to a larger office and warehouse facility in Oxley.

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Travelling With MND - Kev and Leanne's Trek Across Oz

Jason Russo | 4/09/2020

Today we said 'farewell' to Kev and Leanne who are leaving Deception Bay to move to Perth on their big adventure titled 'Travelling with MND - Kev and Leanne's Trek Across Oz'.

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